DETAILS: Partners Against Mortality in Epilepsy (PAME) is a collaborative 2.5 day meeting devoted to learning more about the mortality risks that accompany epilepsy, including Sudden Unexpected Death In Epilepsy (SUDEP). Attendees will include parents and caretakers, adult patients, bereaved family members, advocates, medical professionals, government agencies and industry leaders who come together to advance progress and support each other.
The conference will take place June 14-16, 2018 in Alexandria, VA, and all those impacted by epilepsy are invited to attend. Danny Did is a partner and a sponsor of this event as a means to advance awareness, education and solutions for SUDEP and other forms of mortality in epilepsy.
REGISTRATION: Online registration is at http://pame.aesnet.org/. The conference fee is $150 for caretakers and advocates, and $250 for healthcare professionals. Howeever, early bird rates of $100 for advocates and $200 for professionals will be available until May 16th.
You will also find hotel information at this website.
CAPITOL HILL ADVOCACY VISITS: For those interested, there will be an opportunity to visit Capitol Hill on the afternoon of Thursday, June 14. These meetings with legislators and their staff lend a chance to highlight issues of importance to the epilepsy community. CLICK HERE to learn more.
DDF TRAVEL GRANTS: The Danny Did Foundation offers travel grants for those who need financial assistance to attend PAME. To receive our application, please email firstname.lastname@example.org.
Applications must be submitted by April 1st.
*PAME is hosted by the American Epilepsy Society (AES). In addition to AES, Major contributing organizations include the Danny Did Foundation, the Epilepsy Foundation of America and CURE: Citizens United for Research in Epilepsy and The Danny Did Foundation.