Devices & Technology
The Danny Did Foundation is committed to tracking the evolving field of seizure alerting and prediction devices – and related technologies – that are designed to enhance safety for a person with epilepsy.
While no device has been proven to prevent epilepsy-related mortality (including SUDEP), early intervention during a seizure is believed to reduce the risks that accompany epilepsy. A goal of Danny Did is to educate patients and their families about technology options that may complement their epilepsy treatment plan.
Disclosure: The DDF cautions that not all devices listed on this site are approved by the United States Food and Drug Administration. Unless noted, these resources are consumer products and not medical devices. We strongly recommend your communication with the manufacturers of these products, as well as consultation with doctors, to determine the potential usefulness of any device for your situation.
The DDF does not warrant these products and is not a manufacturer, distributor, seller, representative, or broker of the products shown on this website. DDF offers only introductory information about the potential of these devices, and does not accept responsibility for the consequences of the actual use of any device listed on this website.
Be sure to review all the key factors when considering which system is a fit for child or adult users.
Non-Invasive Alerting Systems
Emfit Movement Monitor
The Emfit Movement Monitor is a trusted, clinically proven technology for quickly detecting, monitoring, and alerting a family member or caregiver to nighttime seizure activity involving continuous, repetitive faster movements (muscle jerking). It is used and marketed in Europe as an Epilepsy Seizure Alarm.
Embrace Watch by Empatica
The Embrace2 is a wristwatch worn device that is designed to detect and alert for tonic-clonic (convulsive) seizures after 20 seconds, and to monitor physical activity and rest. It transmits data to a paired smartphone and has the ability to alert others via a text message and phone call when certain seizure types occur. The system requires the person wearing the watch to have a compatible smartphone, which they must keep within approximately 25 feet.
SAMi – The Sleep Activity Monitor
SAMi is a wearable-free nighttime movement monitor appropriate for all ages. It was purpose built for parents, caregivers and individuals that need to watch carefully for abnormal movement at night without compromising their sleep or their child’s safety. The device can be configured to alert to both rhythmic (repetitive) and non-rhythmic movement in the face, extremities, or full body movements, even when someone is under bed covers or in a crib. SAMi is highly customizable so you can choose how much motion SAMi should look for, and how long to wait until setting off the alarm. The device can also automatically record HD video/audio of any motion throughout the night, which can be easily reviewed or shared with a Doctor.
When abnormal movement is detected, the SAMi app triggers the alarm and displays live video + audio so the caregiver can quickly determine if action is needed. The device works in complete darkness, utilizes 256 bit encryption, does not require any internet connection to function. It supports up to 4 people monitoring at once either remotely or in the home, and can be easily taken with you when traveling.
The SAMi app is free to download, and the maintenance and new features are all at no cost.
NOTE: SAMi offers a 10 percent referral discount to anyone who mentions Danny Did Foundation when placing an order. When placing the order through their website, enter the coupon code “friendsofdanny” during checkout to receive the discount. As a secondary option for qualified candidates, Danny Did may be able to provide financial assistance.
Portable Pulse Oximeter
Portable pulse oximeters are non-invasive medical devices that typically attach to a fingertip or a toe to measure heart rate and blood oxygenation percentage —both vital statistics that are affected while a person is seizing. These devices are not explicitly designed or manufactured to detect seizures, but pulse oximeters do have applicable monitoring and alarm-sounding functions that can be useful to some who experience seizures.
The Inspyre™ app by Smart Monitor is designed to be used on an Samsung or Apple Watch to detect repetitive shaking motion. When the Inspyre detects abnormal motion, it sends a signal to the app running on the user’s device (iPhone or Android phone) to send text and phone call alerts to whomever the SmartWatch Inspyre™ user designates, such as multiple family members and care providers. When that occurs, family members receive these alerts which include the date, time, location, and duration of the event. SmartWatch Inspyre™ users can also summon help with the push of a button. Alerts can be sent to any phone, anywhere, and reports of each event can be accessed for later review with physicians. To use the system, you must have or purchase specific hardware (an Apple or Android watch). Other costs include payment of a monthly subscription fee.
Danny Did Device Grant Program
If you are seeking funds to help with the cost of a device, review and research the product options and then click on the application button below. Once your application has been completed and received you will receive an email to set up a short interview call. Danny Did does not provide funding for all devices listed on our site, please check the device description for grant availability.
Note, we can only assist with one resource per family. Submission of an application does not equal a guarantee of funding. If you have questions, contact us at email@example.com.