One of the first things that occurred to us after Danny died was that there must have been something we could have done that might have spared us this tragedy. That ‘something’ seemed so simple: a device that can reliably sound an alarm when seizure activity occurs. Such a device, we figured, would at the very least provide the opportunity for parents to address the seizure.
We looked around, and in doing so, we came across the Emfit Movement Monitor. Would its calibration be sensitive and specific enough to prohibit too many false-positive alarms? We got one and tested it out. We showed it to medical experts. We were all impressed.
Widely used and marketed in Europe as an Epileptic Seizure Alarm, the U.S. version of this product is called the Emfit Movement Monitor. To read FAQs about this product, click here. Emfit also makes a second product, called the QS. See below for details.
PRODUCT #1 WEBSITE: Click here to learn about the Emfit Movement Monitor. We encourage you to research this technology and to contact Emfit with any questions. The device requires repetitive movement in order to alarm. To be clear, this device does not prevent seizures and it does not prevent SUDEP. To view a YouTube video that overviews how to set up the Emfit device, click here.
NOTE: Emfit offers a 10 percent referral discount to anyone who mentions Danny Did Foundation when placing an order. If placing the order online, enter the coupon code “dannydid” to receive the referral discount. As a secondary option, you can contact Danny Did at enjoylife@dannydid.org for assistance in acquiring an Emfit product if this resource seems right for you, but cost is a barrier.
PRODUCT #2, THE EMFIT QS: Separate from the Emfit Movement Monitor product, the Emfit QS is a non-body-contact sleep and wellness tracker that stores essential sleep statistics, heart rate, respiration rate and movement activity to a cloud server. Its web application allows users to study the data of their sleep quality, to enable changes in lifestyle choices that affect your sleep. The Emfit QS can be used by itself, or in companion with the Emfit Movement Monitor. To learn more and to view subscription pricing, visit here.