Skip to main content
close [x]

Advancing Awareness of Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP)

Knowledge Is The
Antidote For Fear


VIEW: summary | month | week | day | details

Partners Against Mortality in Epilepsy (PAME) Webinar

Monday, December 07, 2020
01:30 PM - 03:30 PM

PAME is going virtual in 2020! PAME is a collaboration devoted learning and sharing more about the risks for mortality in epilepsy.

DETAILS: Partners Against Mortality in Epilepsy (PAME) is a first-of-its-kind collaboration among health care providers, clinical researchers, basic scientists, public health officials, patient advocates, caregivers, bereaved families, and people living with epilepsy. This range of stakeholders come together with a common goal of improving our understanding of and working to prevent epilepsy-related forms of mortality, including suicide, accidents, and status epilepticus and with a strong focus on Sudden Unexpected Death in Epilepsy (SUDEP).

This year, PAME will occur as a free, 2-hour webinar session devoted to educating about mortality risks that accompany epilepsy. The webinar will take place as a session within the annual American Epilepsy Society conference. Parents and caretakers, adult patients, bereaved family members, advocates, medical professionals, government agencies and industry leaders are all welcome to this free webinar.

PAME – Even a Pandemic Can’t Stop the Quest 
Monday, December 7, 2020 from 2:30 pm – 4:30 pm Eastern
This two-hour virtual PAME session will feature a story of life and loss from Victor and Libby Boyce, updates on new research and advocacy recommendations, and a review of Vital Topics in Epilepsy Mortality:
• Insights into all-cause mortality - Elizabeth Donner, MD, MSc, FRCPC
• Epilepsy-related mortality risk: Another example of health disparity due to socioeconomic status - Daniel Friedman, MD
• Why is SUDEP more common at night? Role of sleep - Torbjörn Tomson, MD, PhD and Kristina Simeone, PhD
• Is seizure-induced apnea a SUDEP biomarker? - Nuria Lacuey, MD, PhD and George Richerson, MD, PhD  

REGISTRATION: The session will be live streamed this year, allowing families and advocates who do not attend the full AES2020 conference to view PAME at no cost.  Submit your name and email address to receive instructions later this fall about how to watch. To register for the full AES2020 meeting, visit the registration page on the event website. 

PARTNERS: The PAME effort is convened by the American Epilepsy Society. In addition to AES, Major contributing organizations include the Epilepsy Foundation of America and CURE: Citizens United for Research in Epilepsy and the Danny Did Foundation


2020 PAME Conference Executive Committee

Elizabeth J. Donner, MD, MSc, FRCPC
PAME Conference Co-Chair
Assoc Professor, Univ of Toronto Faculty of Medicine
Pediatric Neurologist, Hospital for Sick Children 
George B. Richerson, MD, PhD
PAME Conference Co-Chair  
Head, Department of Neurology
Carver College of Medicine, University of Iowa 
Tom Stanton 
PAME Conference Co-Chair
Executive Director, Danny Did Foundation 
Gardiner Lapham, RN, MPH
Family advocate
BAND Foundation Trustee 
Jeffrey Buchhalter MD, PhD, FAAN, FAES
Epilepsy Learning Healthcare System
Pediatric Epilepsy Learning Healthcare System 

Terms of Service|Privacy Policy|Contact Us

3008 Central Street, Suite 203, Evanston, IL 60201

© 2018 Danny Did Foundation. All Rights Reserved.

Website design and development by, Inc.


Please go and enjoy your life.
Danny Did.