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Advancing Awareness of Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP)

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Partners Against Mortality in Epilepsy (PAME) Meeting

PAME-logo-color-2016
Thursday, December 01, 2022
08:00 AM - 06:30 PM
Hilton Nashville Downtown
121 4th Ave S
Nashville, TN 37201




All are invited to attend in Music City

DETAILS: Partners Against Mortality in Epilepsy (PAME) is a powerful, growing collaboration among health care providers, clinical researchers, basic scientists, public health officials, patient advocates, caregivers, bereaved families, and people living with epilepsy. This range of stakeholders come together with a common goal of improving our understanding of and working to prevent epilepsy-related forms of mortality, including suicide, accidents, and status epilepticus and with a strong focus on Sudden Unexpected Death in Epilepsy (SUDEP).

This year, PAME will host a one day meeting on December 1st, in conjunction with the American Epilepsy Society Meeting in Nashville. Parents and caretakers, adult patients, bereaved family members, advocates, medical professionals, government agencies and industry leaders are all welcome.


Stay Tuned for the 2022 PAME Conference Agenda Coming Soon 

REGISTRATION: Registration to attend PAME in person is $150 for professionals, $50 for trainees, and $25 for advocates and family members.

  • If you are registering for the AES Annual Meeting, you can register for PAME at the same time. 
  • If you plan to attend the PAME meeting only in person, email pame@aesnet.org for instructions. 
  • To sign up for the live stream to watch the meeting remotely, email pame@aesnet.org for instructions. 

See the full details for registration HERE


TRAVEL GRANTS: For family members or medical professionals who would like to attend the in person meeting but face financial barriers, Danny Did is accepting applications for up to $1,500 in travel support. Email enjoylife@dannydid.org to request a grant application.  


PARTNERS: The PAME effort is convened by the American Epilepsy Society. In addition to AES, Major contributing organizations include the Epilepsy Foundation of America and CURE: Citizens United for Research in Epilepsy and the Danny Did Foundation

PAME_lead_sponsors

2022 PAME Conference Executive Committee

Elizabeth J. Donner, MD, MSc, FRCPC
PAME Conference Co-Chair
Assoc Professor, Univ of Toronto Faculty of Medicine
Pediatric Neurologist, Hospital for Sick Children 
 
George B. Richerson, MD, PhD
PAME Conference Co-Chair  
Head, Department of Neurology
Carver College of Medicine, University of Iowa 
 
Tom Stanton 
PAME Conference Co-Chair
Executive Director, Danny Did Foundation 
 
Gardiner Lapham, RN, MPH
Family advocate
BAND Foundation Trustee 
 
Jeffrey Buchhalter MD, PhD, FAAN, FAES
Epilepsy Learning Healthcare System
Pediatric Epilepsy Learning Healthcare System 
 
 

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