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Advancing Awareness of Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP)

Knowledge Is The
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Partners Against Mortality in Epilepsy (PAME) Meeting

Thursday, December 02, 2021
08:00 AM - 06:30 PM
Marriott Marquis Hotel
2121 S Prairie Ave
Chicago , IL 60616

PAME is going hybrid in 2021! All are invited to attend in Chicago, or watch remotely online.

DETAILS: Partners Against Mortality in Epilepsy (PAME) is a powerful, growing collaboration among health care providers, clinical researchers, basic scientists, public health officials, patient advocates, caregivers, bereaved families, and people living with epilepsy. This range of stakeholders come together with a common goal of improving our understanding of and working to prevent epilepsy-related forms of mortality, including suicide, accidents, and status epilepticus and with a strong focus on Sudden Unexpected Death in Epilepsy (SUDEP).

This year, PAME will host a one day meeting on December 2nd, in conjunction with the American Epilepsy Society Meeting in Chicago. For those who can't attend in person, there will be an option to view a free live stream online. Parents and caretakers, adult patients, bereaved family members, advocates, medical professionals, government agencies and industry leaders are all welcome.

The 2021 PAME Conference will feature four sessions: 
  • Meeting in the Middle: Bidirectional lessons for SUDEP from basic and clinical research today
  • Studying SUDEP - best practices for epidemiologic and intervention studies
  • Navigating the psychological impacts of epilepsy on the individual & family - Living with uncertainty and surviving loss
  • Hot Topics in Mortality in Epilepsy Research

REGISTRATION: Registration to attend PAME in person is $150 for professionals, $50 for trainees, and $25 for advocates and family members.

  • If you are registering for the AES Annual Meeting, you can register for PAME at the same time. 
  • If you plan to attend the PAME meeting only in person, email for instructions. 
  • To sign up for the live stream to watch the meeting remotely, email for instructions. 

See the full details for registration HERE

TRAVEL GRANTS: For family members or medical professionals who would like to attend the in person meeting but face financial barriers, Danny Did is accepting applications for up to $1,500 in travel support. Email to request a grant application.  

PARTNERS: The PAME effort is convened by the American Epilepsy Society. In addition to AES, Major contributing organizations include the Epilepsy Foundation of America and CURE: Citizens United for Research in Epilepsy and the Danny Did Foundation


2021 PAME Conference Executive Committee

Elizabeth J. Donner, MD, MSc, FRCPC
PAME Conference Co-Chair
Assoc Professor, Univ of Toronto Faculty of Medicine
Pediatric Neurologist, Hospital for Sick Children 
George B. Richerson, MD, PhD
PAME Conference Co-Chair  
Head, Department of Neurology
Carver College of Medicine, University of Iowa 
Tom Stanton 
PAME Conference Co-Chair
Executive Director, Danny Did Foundation 
Gardiner Lapham, RN, MPH
Family advocate
BAND Foundation Trustee 
Jeffrey Buchhalter MD, PhD, FAAN, FAES
Epilepsy Learning Healthcare System
Pediatric Epilepsy Learning Healthcare System 

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Danny Did.