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Advancing Awareness of Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP)

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Infantile Spasms Awareness Week

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Friday, December 01, 2017 - Thursday, December 07, 2017
07:00 AM - 06:00 PM
Location: Wherever You Are!



Knowing the signs of infantile spasms is key to getting quick and effective treatment.

Infantile spasms (IS) are subtle seizures occurring in children under age one. While rare, they can cause long-term damage to a child’s developing brain. 

AWARENESS WEEK DETAILS: As part of our continued dedication to raising awareness of infantile spasms, the Danny Did Foundation is part of a coalition of patient-advocacy groups who are participating in Infantile Spasms Awareness Week (ISAW), and we hope you will join. Because infantile spasms can be mistaken for other conditions or appear subtly, prompt diagnosis and appropriate treatment are critical for a child’s best developmental outcome – and that’s why we’re dedicated to raising awareness of this disease.

Identifying IS is critical for parents, caregivers, and providers. The earlier a child is diagnosed, the greater the chances that the spasms can be treated-helping to minimize the long-term harm to a child's developing brain. Members of the Infantile Spasms Action Network have established 'STOP' Infantile Spasms to help people remember what's most important when recognizing the disease's subtle symptoms:
 
*See the signs: clusters of sudden, repeated, uncontrolled movements like head bobs or body crunching
*Take a video: record the symptoms and talk to your doctor immediately*
*Obtain diagnosis: confirm an irregular brain wave pattern with an EEG test
*Prioritize treatment: end spasms to minimize developmental delays
 
We ask you to join us in spreading this important message. Many people mistake IS for other conditions or see them as not harmful, but prompt diagnosis and appropriate treatment are critical for a child's best developmental outcome. During Infantile Spasms Awareness Week (ISAW) 2017, your contribution to this conversation means so much. Parents/caregivers, physicians and advocacy organizations alike can join ISAW efforts by joining the conversation. 

KNOW THE SIGNS OF INFANTILE SPASMS:

  • Jerking at the tummy
  • Arm raising 
  • Wide-eyed blinks

SOCIAL MEDIA: Please join us on social media using #ISAW2017

FOR MORE INFORMATION, visit www.isweek.org.

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Danny

Please go and enjoy your life.
Danny Did.

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