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What is the exact diagnosis?
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What is likely causing the seizures?
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What are treatment options and what are some alternative approaches?
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What side effects can be expected with treatment, and how can they be managed?
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What types of tests do we need, and would more testing help?
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Should we see an epileptologist? (An epileptologist is a neurologist that focuses exclusively on treating epilepsy.)
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Ask about nocturnal seizures.
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What types of devices exist that can alert a caregiver when seizure activity occurs?
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What should prompt a phone call between visits?
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Ask about MRI tests, both with and without contrast.
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Ask the doctor to discuss the risks presented by epilepsy, including SUDEP.
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Seek another doctor referral if you want a second opinion, and remember, no one can or will advocate for your loved one more than you.