Helpful Resources

In search of information pertinent to addressing epilepsy, SUDEP and its related issues, the Danny Did Foundation engages physicians and researchers in the fields of neurology and epileptology, we meet with medical technology companies, and we consult with epilepsy organizations. Below are writings and organizations that the DDF believes provide beneficial information to patients and caregivers of those who suffer from seizure disorders. Find more information on Devices and Technology here.

Danny Did Foundation Publications

• Danny Did Foundation Seizure Safety / SUDEP Info Publication. Jointly published by the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago, this brochure outlines some of the most important areas of concern that those with epilepsy are likely to have. The printed form of this publication is distributed to hospitals, epilepsy centers, pediatricians offices, and epilepsy organizations across the United States and beyond. To request copies of this brochure for your events, group, hospital, doctor’s office, family, or community, please email Kathleen Malone at kmalone@dannydid.org. To see this brochure in Spanish, click here.
  
• Danny Did Foundation Trifold Brochure. This informational brochure spells out who we are and what we do. Please contact Kathleen Malone at kmalone@dannydid.org to request copies of this brochure for your events, group, hospital, doctor’s office, family, or community.
• Danny Did Foundation First Seizure . . . Steps To Take Info. A simple, helpful guide . . . something we wish were made available to us.

Useful Articles and Papers

• The Role of Anti-Depressants in Reducing SUDEP, Feb. 8, 2012
• Unmasking Silent Killer in Epilepsy, New York Times, July 26, 2010.
• Jon Meacham: Epilepsy In America: What Needs To Be Done, from Newsweek magazine.
• Dr. Stephan Schuele: Talking about SUDEP is First Step to Understanding It, from Epilepsy Connections magazine courtesy of the Epilepsy Foundation of Greater Chicago.
• Morgan Murphy: Epilepsy’s Hidden Toll, from Epilepsy Connections magazine courtesy of the Epilepsy Foundation of Greater Chicago.
• Sudden Unexpected Death in Epilepsy: A Global Conversation, reprinted with the permission of Epilepsy Australia – the national coalition of Australian epilepsy associations and Epilepsy Bereaved UK.
• Report of the American Epilepsy Society and the Epilepsy Foundation Joint Task Force on Sudden Unexplained Death in Epilepsy, from Epilepsia.
• What Can be Done to Reduce the Risk of SUDEP?, from Epilepsy & Behavior.
• Jeffrey Noebels, MD, PhD and Alica Goldman, MD, PhD, Baylor College of Medicine, Houston: A Preventable Cause of Sudden Unexpected Death in Epilepsy (SUDEP) Finally is Established.