The Danny Did Foundation consults with medical professionals and epilepsy organizations in search of information pertinent to addressing SUDEP and its related issues. Below are writings and organizations that the DDF believes provide beneficial information to patients and caregivers of those who suffer from seizure disorders. Find more on technology and devices here.

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DDF Publications

Seizure Safety / SUDEP Info Publication
Jointly published by the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago, this brochure outlines some of the most important areas of concern that parents of children with epilepsy are likely to have — and there are a lot of these parents out there: each year, 45,000 children under the age of 15 are diagnosed with epilepsy in the United States. The printed form of this publication will be distributed to epilepsy centers, pediatricians offices, and epilepsy organizations across Illinois and beyond.

The First Seizure . . . Steps To Take

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Articles To Know About

Unmasking Silent Killer in Epilepsy, New York Times, July 26, 2010

Jon Meacham: Epilepsy In America: What Needs To Be Done, from Newsweek magazine

Dr. Stephan Schuele: Talking about SUDEP is First Step to Understanding It, from Epilepsy Connections magazine courtesy of the Epilepsy Foundation of Greater Chicago

Morgan Murphy: Epilepsy’s Hidden Toll, from Epilepsy Connections magazine courtesy of the Epilepsy Foundation of Greater Chicago

Sudden Unexpected Death in Epilepsy: A Global Conversation, reprinted with the permission of Epilepsy Australia – the national coalition of Australian epilepsy associations and Epilepsy Bereaved UK

Report of the American Epilepsy Society and the Epilepsy Foundation Joint Task Force on Sudden Unexplained Death in Epilepsy, from Epilepsia

What Can be Done to Reduce the Risk of SUDEP?, from Epilepsy & Behavior

Jeffrey Noebels, MD, PhD and Alica Goldman, MD, PhD, Baylor College of Medicine, Houston: A Preventable Cause of Sudden Unexpected Death in Epilepsy (SUDEP) Finally is Established

BBC News: Dog Helps Severe Epileptic Live Life to Fullest

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Epilepsy Organizations