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Advancing Awareness of Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP)

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Epilepsy Awareness Day & Expo at Disneyland

2017EADDL.logo
Monday, November 06, 2017 - Wednesday, November 08, 2017
03:00 PM - 06:00 PM
Disneyland Resort in California
1313 Disneyland Drive
Anaheim , CA 92802



Families and advocates from around the USA and world converge to turn the world's most iconic theme park purple in support of epilepsy awareness!

DETAILS: The 5th Annual Epilepsy Awareness Day at Disneyland Resort will take place on November 8, 2017. All families and advocates are invited to attend this event and join the epilepsy community to turn Disneyland purple! Epilepsy Awareness Day at Disneyland was founded by parents Brad and Candy Levy as an awareness-building tribute to their 15 year-old daughter Sofie, who is now seven years seizure free. More than 1,200 supporters attended in 2016. With your help, we can top that number this fall, while advancing awareness of epilepsy in partnership with the iconic Disney brand. Danny Did is excited to once again be a partner to this event.

EVENT EXPO: The free EXPO will be held at The Disneyland Hotel from 3-7 pm on November 6th and 10 am - 5 pm on November 7th. The Expo will feature over 50 non-profit Epilepsy support groups, hospitals with Epilepsy programs and vendors who service the Epilepsy community. The goal for the EXPO is to give the Epilepsy community a chance to unite in a setting with ample time to network with other families who share similar conditions, learn about new treatments and products, and hopefully, create long term relationships with other families affected by epilepsy.

DDF TRAVEL ASSISTANCE GRANTS: To apply for a DDF travel grant, please submit a letter responding to the questions below in 300 words or less. To be eligible, submissions must include your name, hometown, email and phone number.

DEADLINE: Your request for consideration must be submitted via email to mduffy@dannydid.org on or before April 7, 2017.

GRANT DETAILS: Grants will be awarded up to $1,000 to help cover travel related costs and/or to purchase Disneyland tickets specific to the date of November 8th. Each submission that addresses all questions below will be entered into a drawing. Our grant awardees will be announced in April 2017.

APPLICATION QUESTIONS:
1. Tell us about yourself or your relative/loved one who has been impacted by epilepsy or SUDEP.
2. Outline your anticipated funding needs related to traveling to Anaheim, California for the Epilepsy Awareness Day events. (Note: Our award is not to exceed $1,000, so you must be able to cover expenses beyond that amount.)
3. Please provide background on the basis for your financial need.

4.  Have you received financial assistance to attend EADDL from any organization or foundation in the past? If yes, please share details. 

Important Notes:

*We will prioritize funding support for those who have not received funding in the past; however, anyone is welcome to apply. 

*You must make your own travel arrangements. 

*You will submit receipts to the Danny Did Foundation for reimbursement after your trip is completed.

*Travel dates eligible for reimbursement include 11/6/17-11/9/17. If you extend your trip beyond those dates, you will need to be able to cover those expenses. 

To learn more about Epilepsy Awareness Day at Disneyland, please visit http://www.epilepsyawarenessday.org. 

REGISTRATIONClick here to register and to find more information. Note: The deadline to purchase tickets online at a discounted rate is October 28th. 

EVENT FACEBOOK PAGE: Please click here for more details, updates, pictures and to ‘like’ the event Facebook page!

 

 
 

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