One of the first things that occurred to us after Danny died was that there must have been something we could have done that might have spared us this tragedy. That ’something’ seemed so simple: a device that can reliably sound an alarm when seizure activity occurs. Our thoughts at first centered around a device that attached to a person and monitored vital statistics, like a pulse oximeter. Such a device, we figured, would at the very least provide parents and loved ones of those afflicted with seizures during sleep the opportunity to address the seizure. And having the ability to address the seizure beats not knowing that a seizure is happening, regardless of the outcome.

So we looked around for such a device. In doing so, we came across the Emfit Movement Monitor and were intrigued. Could a technology like this work? Would its calibration be sensitive and specific enough to prohibit too many false-positive alarms? We got one and tested it out. We showed it to medical experts who also happen to be our neighbors. We were all immediately impressed.

Widely used and marketed in Europe as an Epileptic Seizure Alarm, the U.S. version of this model is the Movement Monitor. The Danny Did Foundation is working to get this product tested and analyzed in hospital settings and we have received verbal commitments from top doctors in the Chicagoland area to do just that.

Please visit the Emfit website to consider this product for yourself. We encourage you to research this technology and to contact Emfit with any questions. Please contact the Danny Did Foundation at tfstanton@dannydid.org for assistance in acquiring an Emfit Movement Monitor if this product seems right for you but financial constraints are an impediment.