Danny Did Ambassadors Program
Danny Did Ambassadors are extraordinary volunteers who choose to serve the Danny Did Foundation at elevated levels of engagement and responsibility. Danny Did Ambassadors are encouraged to share their own personal stories as a means to introduce the Danny Did Foundation to an expanded audience. The main goals of each Ambassador are: promoting the Danny Did Foundation and its mission to prevent deaths caused by seizures; advancing awareness of epilepsy and of Sudden Unexplained Death in Epilepsy (SUDEP); fundraising for the Danny Did Foundation; and initiating contact with medical professionals and epilepsy organizations interested in an association with the Danny Did Foundation. With the Danny Did Foundation’s support, Ambassadors work independently and proactively as official representatives of the Foundation so that the Danny Did Foundation is ‘on the ground’ across the United States and around the globe. For information on this program, email Tom Stanton at tfstanton@dannydid.org.
With gratitude we introduce our Danny Did Ambassadors:
Dana Alfassa
Montreal, Canada and Chicago, Illinois
dana.alfassa@mail.mcgill.ca
A former intern for the Danny Did Foundation, Dana now spreads the word of our foundation via her university community in Montreal and her networks in her hometown of Chicago.
Mylissa and Jeff Daniels
West Virginia
deedallas@comcast.net
Mylissa and her husband Jeff lost their 5 year-old son Dallas to SUDEP in January 2011. They have held several fund raisers to benefit Danny Did, including a 5K walk and a T-shirt sale. Mylissa has spoken before the Institute of Medicine to represent both her personal experience and our shared cause.
Scott and Lana Frey
Indiana
drscottfrey@yahoo.com
Scott and his wife Lana have a five-year-old daughter who faces the challenges of both Cerebral Palsy and Epilepsy. A dentist, Scott utilizes his professional networks to raise awareness and funds for our cause. The Freys also serve as our liaisons to the Indiana Chapter of the Epilepsy Foundation.
Kari and Dennis Knapp
Twin Cities, Minnesota
3leggedchair@comcast.net
Kari and her husband Dennis lost their 22-year-old son Jake to SUDEP in March 2009. They serve as our liaison to the Minnesota Chapter of the Epilepsy Foundation. Each summer the Knapp family hosts a Socks & Sandals Golf Outing fund raiser, aptly named because Jake always wore socks with his sandals. Portions of the proceeds are used to purchase seizure detection devices for families who cannot afford them.
Cindy Mitchell & Family
Southern California
DDF.CindyMitchell@gmail.com
Cindy and her husband Tom have a son Robert who has epilepsy. Their Seizure Response/Assistance Dog is a big part of the family, his name is Boomer. The Mitchells have represented Danny Did at several epilepsy conferences, meetings and expos in California, and serve as our liaisons to the Los Angeles Chapter of the Epilepsy Foundation.
