Founded in January 2010 by Chicagoans Mike and Mariann Stanton after the Sudden Unexpected Death in Epilepsy (SUDEP) of their four-year-old son Danny, the Danny Did Foundation is dedicated in its mission to prevent deaths caused by seizures. With nearly three million people facing the challenges of epilepsy in the U.S. –and 50 million people affected by epilepsy worldwide– the issue of aggressively addressing SUDEP is as urgent as it is logical.

Danny Did Foundation has these main goals:

  1. Advancing awareness of epilepsy and of Sudden Unexpected Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and those afflicted by seizures.
  2. Mainstreaming of seizure detection and seizure prediction devices as well as other technologies that may assist in preventing deaths caused by seizures.

We view these devices as complimentary to medicinal, surgical and dietary measures that are used to treat seizures. Epilepsy impacts nearly 3 million people in the U.S. and 50 million people worldwide, and it is estimated that up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures), SUDEP, and other seizure-related causes such as drowning and other accidents. From grammar school kids to nationally recognized epilepsy experts, Danny Did Foundation believes that a global problem such as epilepsy deserves the attention of all of the globe’s inhabitants.

Danny Did Foundation is a not-for-profit corporation organized in the state of Illinois and recognized by the Internal Revenue Service as a 501(c)(3) tax-exempt organization. Our Tax ID number is 271642251. Danny Did Foundation’s name derives from the last sentence of Danny’s obituary: Please Go And Enjoy Your Life. Danny Did.®